one small step for haden ........................................ one big leap for family kind

It's been one week since Occupational Therapy has started.
  And yet ...  progress!!!

At every session Haden's arms and legs are stretched
He has such tight arms and legs ... this is never an enjoyable experience for him

This week ...
Haden reaches higher for toys
he bends his knees with a bit more ease
he is starting to push himself up into a correct crawling position
And best of all ... Haden has learned to be a climber
He is so proud to be on top of anything that comes in his way

Granted he is not able to get his legs up on the boxes just yet 

           non-the-less a blessing to watch him explore

Our therapist also put Haden on thickened liquids.

First she used a spoon, which is an extremely labor intensive process for an almost 10m old.

She told us to not even bother with sippy cups yet.

He still doesn't have the muscle strength in his mouth or his core to be able to suck.

I tried it at the end of the week anyway

I just wanted to see what would happen

Haden mostly chewed on the sippy nipple, but he did get drops of juice 

     he liked it 

for about four minutes he pulled that cup in and out of his mouth

And it was the FIRST TIME he tolerated liquids from a cup

Excitement doesn't even begin to explain our feelings.

  a new sense of hope. 

    a new joy ... just watching my smiley baby be able to swallow a liquid without pain.

And that brings us to tonight.

  tonight we did what we have thought impossible for 10 very long and very trying months.

We used that thickener our OT gave us, and we put it in formula

   We dug out a bottle

      We searched for the nipple with the variable flow 

         and we had hope

For the past month, John and I have been dripping milk into Haden's mouth using a syringe.  

  It was a horrible adventure for all of us. Haden screamed and coughed and choked down the drops of milk. And he fought us with all his strength.   We continued to force milk drops in until he was full at only half of one ounce. (remember a 10m old baby typically takes 8oz of milk).  

Because of that half ounce of formula Haden went from waking every hour and half to sleeping nearly 11 hours each night.  

My own thoughts of  Haden waking so hungry and with all his might gnawing the milk out of me instead of suckling have tormented me this past month.  As rest began to fill my body ... I knew it was time to let God in.         I cannot make Haden suck, and I cannot make Haden grow. 

But I can give over my thoughts and my guilt and my control and let my God teach Haden to suck, and grow.

So as I stuck that bottle in, 

 I began a lullaby that was simply a song of praise

  I watched as Haden did not cry 

  I watched as he did not suck either

 but he gnawed ... and tolerated the thick milk going in and then down into the stomach                                                                      

I sang as he fell asleep after he quickly drank his half of an ounce of milk                                                                                           His stomach was not full of air from screaming

 It was the most peaceful he fallen asleep since in over a month

I know this is one tiny step in the scheme of things

   there is still so much that Haden is not doing  

        he's  not even sucking yet ...

 I know there is still much therapy in his future 

There are so many things he is not physically doing a typical 10month baby should

But my baby is the happiest baby you will ever meet

and my baby is smart and is mentally developed like a 10month old baby should be

but tonight I have a restored hope and a restored faith

  but tonight my baby at 10 months old took his first ever bottle without crying or choking or refusing

TONIGHT MY BABY DRANK MILK FROM A BOTTLE 

    AND TONIGHT I CELEBRATE THAT

keep growing sweet Haden